My March challenge had its highs and lows: from running 20km in the initial week, to strong weeks of 42km and 36km, before finishing on 15km after another injury. Not the perfect ending, but it reflects life and the challenges of living with a bleeding condition, some days things can be difficult, balanced by days when things go well and you feel the incredible support from around you including family, friends, the NHS and charities like Haemophilia Northern Ireland. Every k

The Infected Blood Compensation Authority (IBCA) has now paid more than £2 billion in compensation to those impacted by the infected blood scandal. The first payments were made in December 2024, and since then IBCA has: paid nearly all living infected people registered with a support scheme; opened the compensation claim service to the first claims for those who are living infected and never compensated, deceased infected and affected; opened the registration service so anyon

Progress Update: A Permanent Home for the Infected Blood Inquiry Memorial   As the Public Inquiry into the Infected Blood Scandal approaches its conclusion at the end of this month, an important milestone has been reached. We are pleased to share that a permanent home has now been secured for the Inquiry Memorial - an enduring symbol honouring those whose lives were forever changed.   A New Home at the University of Manchester   On Tuesday 24 March, the Inquiry Memorial will

The first week of the challenge got off to a slower start than I had hoped after picking up a left quadriceps strain, which meant taking a few days off running. I managed 20km across the week, which was disappointing, but thankfully the rest helped and the strain has improved. I’m hoping to make up the lost distance over the remainder of the month. This past week has been much better, with 41km run in total. Running with friends has made a big difference, the motivation and c

Honouring the Women Who Strengthen Our Community   On International Women’s Day , we proudly join a global celebration recognising women’s achievements, resilience, and contributions. At Haemophilia NI, this day holds special significance. Although bleeding disorders are often associated with men, the experiences of women - whether living with a condition, navigating carrier status, caring for loved ones, or leading advocacy - are vital to the heart of our organisation and co

Our Haemophilia NI team of trustees came together on Saturday 21 st  February for a focused and productive planning day. We reviewed and updated key policies and procedures to ensure strong governance and best practice and also spent time discussing trustee roles and responsibilities to strengthen clarity and accountability across the board. We planned future events and looked at resources to ensure we continue delivering meaningful support to the bleeding disorder community

Haemophilia NI proudly joins people and organisations across the globe in marking Rare Disease Day on 28th Feb, a day dedicated to raising awareness of the more than 300 million people worldwide who live with a rare condition. For those affected by rare bleeding disorders, this day holds special significance. While bleeding disorders such as haemophilia A and B are more widely known, individuals and families in Northern Ireland are living with much rarer inherited condition

The Infected Blood Compensation Scheme continues to move forward, and we know many in our community are seeking clarity about what is happening next. Below is an up‑to‑date overview (February 2026) of the key developments from the Infected Blood Compensation Authority (IBCA) and how they affect people in Northern Ireland.   1. Registration Now Open: “Intent to Claim” The IBCA launched its Register Your Intent  service on 9 October 2025. Registering is not  the same as submitt

The Trustees of Haemophilia NI are delighted to share an update on two major events currently being planned for our bleeding disorder community — a Newly Diagnosed Families Event and our annual Community Day.   Newly Diagnosed Families Event . We are very pleased to announce a dedicated weekend event for families who have received a bleeding disorder diagnosis within the past three years. This supportive and informative gathering will take place from 9–10 May 2026 at the Arma

From our Chair, Nigel Hamilton: As a victim of the Infected blood scandal and Chair of Haemophilia Northern Ireland I write from the Inquiry in London on the day of publication of the full Report by Sir Brian Langstaff's team. There are over 1000 attending victims, infected and affected, Legal teams, and other support organisations like Red Cross. The Report highlights the mismanagement and exclusion of victims by successive Governments and The National Health Service in addr

Following announcements from central government in England and the Northern Ireland Health Minister regarding compensation for victims of contaminated blood, Simon Hamilton, Chairperson of Haemophilia NI explained: “The Prime Minister, Boris Johnson, has confirmed that victims and those who tragically lost their partners to the infected blood scandal will each receive interim compensation payments of £100,000. This is interim compensation as recommended by Sir Brian Langstaff