Our Haemophilia NI team of trustees came together on Saturday 21 st  February for a focused and productive planning day. We reviewed and updated key policies and procedures to ensure strong governance and best practice and also spent time discussing trustee roles and responsibilities to strengthen clarity and accountability across the board. We planned future events and looked at resources to ensure we continue delivering meaningful support to the bleeding disorder community

Haemophilia NI proudly joins people and organisations across the globe in marking Rare Disease Day on 28th Feb, a day dedicated to raising awareness of the more than 300 million people worldwide who live with a rare condition. For those affected by rare bleeding disorders, this day holds special significance. While bleeding disorders such as haemophilia A and B are more widely known, individuals and families in Northern Ireland are living with much rarer inherited condition

The Infected Blood Compensation Scheme continues to move forward, and we know many in our community are seeking clarity about what is happening next. Below is an up‑to‑date overview (February 2026) of the key developments from the Infected Blood Compensation Authority (IBCA) and how they affect people in Northern Ireland.   1. Registration Now Open: “Intent to Claim” The IBCA launched its Register Your Intent  service on 9 October 2025. Registering is not  the same as submitt

The Trustees of Haemophilia NI are delighted to share an update on two major events currently being planned for our bleeding disorder community — a Newly Diagnosed Families Event and our annual Community Day.   Newly Diagnosed Families Event . We are very pleased to announce a dedicated weekend event for families who have received a bleeding disorder diagnosis within the past three years. This supportive and informative gathering will take place from 9–10 May 2026 at the Arma

From our Chair, Nigel Hamilton: As a victim of the Infected blood scandal and Chair of Haemophilia Northern Ireland I write from the Inquiry in London on the day of publication of the full Report by Sir Brian Langstaff's team. There are over 1000 attending victims, infected and affected, Legal teams, and other support organisations like Red Cross. The Report highlights the mismanagement and exclusion of victims by successive Governments and The National Health Service in addr

Following announcements from central government in England and the Northern Ireland Health Minister regarding compensation for victims of contaminated blood, Simon Hamilton, Chairperson of Haemophilia NI explained: “The Prime Minister, Boris Johnson, has confirmed that victims and those who tragically lost their partners to the infected blood scandal will each receive interim compensation payments of £100,000. This is interim compensation as recommended by Sir Brian Langstaff