Helpful Documents
We would like to thank The Haemophilia Society for granting us permission to share their documentation on bleeding disorders, treatments, and other valuable information.
Rare Blood Disorders
The best-known and most common bleeding disorders are haemophilia A (factor VIII deficiency), haemophilia B (factor IX deficiency) and von Willebrand disorder. But there are many more rare bleeding disorders involving blood clotting factors and blood cells called platelets.
Bernard-Soulier syndrome
This factsheet is about a bleeding disorder that is related to problems with your platelets called Bernard-Soulier syndrome.
Disability Living Allowance (DLA)
Disability Living Allowance (DLA) is a government benefit to help you with the extra costs of raising a child with a medical condition or disability. DLA can be claimed for children under the age of 16.
EHL factor VIII
This fact sheet is about extended half-life treatment which is now available for all people with haemophilia A in the UK.
Emicizumab (Hemlibra)
This factsheet is about a treatment called emicizumab or Hemlibra, which is for people with haemophilia A who have an inhibitor to FVIII.
Emicizumab W/O Inhibitor
This factsheet is about a new treatment called emicizumab or Hemlibra® for people with severe haemophilia A.
Fibrinogen or Factor I
This factsheet is about bleeding disorders related to problems with a blood-clotting factor called fibrinogen or factor I (one).
Prothrombin or Factor II Deficiency
This factsheet is about a bleeding disorder related to problems with a blood-clotting factor called prothrombin or factor II (pronounced factor 2).
Factor V, Factor VIII combined Deficiency
This factsheet is about a bleeding disorder that is related to problems with two blood factor 5) and factor VIII.
Factor VII Deficiency
This factsheet is about a bleeding disorder that is related to problems with a blood clotting factor called factor VII (seven).
Factor X Deficiency
This factsheet is about a bleeding disorder that is related to problems with a blood clotting factor called factor X.
Factor XI Deficiency
This factsheet is about a bleeding disorder that is related to problems with a blood clotting factor called factor XI.
Factor XIII Deficiency
This factsheet is about a bleeding disorder that is related to problems with a blood clotting factor called factor XIII.
Glanzmann’s Thrombasthenia
This factsheet is about a bleeding disorder called Glanzmann thrombasthenia.
Managing trips, falls and mobility
This booklet is designed to give you the knowledge and strategies to help you stay active and independent while reducing the risk of injury.
Me and My Port Booklet
This booklet has been developed to help your child understand more about the process of having a port inserted.
NOVEL TREATMENTS IN HAEMOPHILIA & OTHER BLEEDING DISORDERS: A PERIODIC REVIEW 2025 - ISSUE 1
Welcome to the first edition for 2025 of the European Haemophilia Consortium’s.
Personal Independence Payment (PIP)
Due to the increasing number of members seeking support after submitting a Personal Independence Payment (PIP) claim, we have created this guide to provide assistance.
Sex and bleeding disorders
Like other people your age, you may have thought about sex as you get into your teens and having a bleeding disorder may add extra worries. There may be things you wonder about, or things you find you need to know.
Ageing with a Bleeding Disorder
This booklet is designed to help our ageing members to plan their specific needs as they reach older age.
Bleeding Disorders and Schools
This booklet is an overview of important points to bear in mind when managing a child with a bleeding disorder
Dental care for adults with a Bleeding Disorder
In this booklet, you will find information on looking after your teeth, mouth and gums, dental care and types of dental treatment if you have a bleeding disorder.
Personal Independence Payment (PIP) Pt2
We have written this guide because more and more members are contacting us to ask for support with making a claim for Personal Independence Payment (PIP).
VON WILLEBRANDS GENETICS
Von Willebrand disease (vWD) is an inherited bleeding disorder whereby the protein in the blood, called Von Willebrand factor (vWF), which helps blood to clot is low or doesn’t work well.