Rachel Olliver

Two HNI trustees, Rachel Olliver, Secretary, and Mary Anne Jess, Trustee, were privileged to attend the European Haemophilia Consortium (EHC) Conference in Istanbul, Türkiye, from 2-4 October. The conference brought together national member organisations (NMOs), healthcare professionals, pharmaceutical companies, and patient representatives from across Europe, all united by a shared commitment to improving the lives of people living with bleeding disorders. Throughout the conference, Rachel...

By Sarah Shelley 3–5 July 2026 | Midland Park Hotel, Portlaoise, Co. Laois The Irish Haemophilia Society, with whom we work closely, invited several Haemophilia NI families to attend their Parents' Conference in Portlaoise from 3–5 July 2026. This annual event has long been an important part of the Irish Haemophilia Society's calendar, and this year marked the first dedicated parents' information event in two years. Friday evening began with arrivals and a welcome buffet, giving families an...

On 17 April 2026, members of Haemophilia NI were proud to be at Belfast City Hospital to mark World Haemophilia Day, helping to raise awareness of bleeding disorders and the importance of timely diagnosis. This year’s World Haemophilia Day theme focused on the importance of diagnosis, highlighting how early and accurate identification of bleeding disorders can change lives and improve long‑term outcomes for individuals and families. We were delighted to be invited by Haemophilia Sister Helen...