Newly Diagnosed Event
Date and time is TBD
|Location is TBD
Newly diagnosed with a bleeding disorder since 2022? Haemophilia NI is planning a special event for families across Northern Ireland — and we’d love your input. Scan the QR code below to register your interest and help us shape an event that truly supports you and your family.
Time & Location
Date and time is TBD
Location is TBD
About the event
Interested in a Special Event for Families Affected by Bleeding Disorders?
If you or your family have received a new diagnosis of a bleeding disorder since 2022 in Northern Ireland, we would love to hear from you.
Haemophilia NI is exploring the creation of a supportive and informative event designed especially for newly diagnosed individuals and families. The aim is to bring people together, share experiences, provide guidance, and help families feel confident and connected as they navigate this new journey.
At this stage, we are inviting families to register their interest using the form linked below. This will help us understand how many people would like to attend and what type of event would be most helpful — whether that’s a one-day gathering or a potential overnight event. Your response will directly shape how the event is planned and funded.
There is no commitment required to complete the form — simply let…